Support services

[G Lochrie]

Hi,

I work for a social care organisation (Quarriers) that wants to improve it's support for individuals with an autism spectrum disorder.

I've been asked to find out from the people we currently support and their families about the types of support and services that they feel would be beneficial. I have had a lot of responses so far from families, but not many people with Aspergers or Autism have been keen to let me know their thoughts.

If you can help me I'd really appreciate it. We currently support around 200 people with an ASD diagnosis, but know we have a lot to learn still, and are very open to suggestions.

So far the majority of families are requesting more information to be available to them without fighting for it, support to help people gain and maintain employment, an Aspie Cafe was suggested, which would be run by people with Asperger's and autism.

Activity centres/camps open for all, not just neurotypicals.

Befriending schemes that are about helping people establish friendships, not just about going out to 10 pin bowling.

Please get in touch if you can help me to feed back to my bosses and help them to plan how to improve our supports for people with an ASD.

Regards,

Gillian

[Jiheishou Daigakusha]

What about individualised schemes? Group stuff's hell for me, but for others, there just isn't enough of it.

[paulo]

(06-14-2011 11:28 AM)Jiheishou Daigakusha Wrote:  What about individualised schemes? Group stuff's hell for me, but for others, there just isn't enough of it.

agree completely, group stuff is useless for me, i just shut down.
maybe getting people together would be a nice thing to do.
not in groups but just one on one, just mail or chat to start with or something.
can get kinda lonely not being able to mingle and socialise.

its verry hard to say what would be helpfull for everyone with an asd.
it verry much depends on the person and what they want or are trying to do.
most of the time i dont even know what the problem is, so its verry hard to ask for specivic help.
thats prob why not many aspies are sharing their thought with you.
cant ask for something if you dont know what it is you need.
confusion and being overwhelmed by the world and my emotions are my bigest problems.
dont know what anyone could do about that for me.

more information is always helpfull.
although i think NT`s are as confused by us as we are by them.
we just cant really seem to understand each other.
i would like a manual of NT people :P

[snowowl]

why do so many general practitioners fail to spot aspergers, and then even worse, leave you to cope on your own totaly! I want to support my son but am also struggling to cope with a seperate illness, and my husband died years ago. My father is very ill in hospital, there are days I can hardly move or look after myself, but I feel totaly isolated. The condition my son suffers from, seems to be unheard of, yet here is a website with people who are going through what he is. I realy feel for him, it breaks my heart there is not more knowledge or understanding from people around us. Because he has not been diagnosed by CAMBS we are in no mans land, he saw them but afterwards someone from the mental health team rang me and told me to leave it..

---

I would welcome help with open arms, of course it is up to my son, but if someone understood, instead before he has just been told to attend school and been bullied for being different

(03-23-2011 12:13 AM)G Lochrie Wrote:  Hi,

I work for a social care organisation (Quarriers) that wants to improve it's support for individuals with an autism spectrum disorder.

I've been asked to find out from the people we currently support and their families about the types of support and services that they feel would be beneficial. I have had a lot of responses so far from families, but not many people with Aspergers or Autism have been keen to let me know their thoughts.

If you can help me I'd really appreciate it. We currently support around 200 people with an ASD diagnosis, but know we have a lot to learn still, and are very open to suggestions.

So far the majority of families are requesting more information to be available to them without fighting for it, support to help people gain and maintain employment, an Aspie Cafe was suggested, which would be run by people with Asperger's and autism.

Activity centres/camps open for all, not just neurotypicals.

Befriending schemes that are about helping people establish friendships, not just about going out to 10 pin bowling.

Please get in touch if you can help me to feed back to my bosses and help them to plan how to improve our supports for people with an ASD.

Regards,

Gillian